Within about 30 minutes of sending what my husband termed, "a stern sounding" email, I had an educator calling me.
She gave me some "across the board" (pretty much every dose) changes that I hadn't felt comfortable making those decisions by myself. I know I've been at this for almost 11 months now, but I'm still leery of making big changes like that.
I guess I still don't trust that I have enough knowledge,or intuition regarding this disease. I swear, sometimes it feels like I'm throwing a dart at a dart board and going with whatever it lands on. Thwock... up dinner time DH by two units. Alrighty, let's go with that.
The good news is I am better at this than 10 months ago, 6 months ago, and even 1 month ago. I'm doing it and my daughter is alive; better than that, she's thriving.
"Throwing a dart at a dart board". Yep- that's how it is sometimes! :) I am to the point where I do most of Jada's adjustments by myself- unless her numbers are just way wacky and I need someone to help me think through it. So far- so good. Our CDE's at TX Children's in Houston highly encouraged to learn how to make those changes on our own and late last summer after not getting phone calls returned in a timely manner, we just started do most of the adjusting by ourselves. It was scary at first, but now I feel like a pro. It's just part of the growing process as the parent of a child w/diabetes. You'll get there!
ReplyDeleteGood job on being a squeaky wheel-- you got your grease!
Way to go with the red-headed e-mail :) Just wait until you get to school stuff -- that red hair will come in handy!!!!!
ReplyDeleteOne day you'll have the confidence to make changes...it's hard to believe that you'll be that independent with stuff that can affect her **LIFE**, but...you will...and you'll do great :)
I just feel like most of the time the doctors and nurses are really just guessing too. When they tell you to increase by this amount, they truly have little idea of what will happen, if it will work? and they have been at it for how long? You are doing a great job and believe in yourself!
ReplyDeleteOur nurse just told us straight up if you make a mistake on the amount of insulin (too much too little) It is always correctable. Too much insulin she gets a cookie, Too little insulin you make a correction. Really no big deal....ya right eh? lol
I found your blog a couple days ago and couldn't sleep when I saw the post about your doctor not responding. They have NO IDEA what it is like raising a baby with diabetes! Corrections don't just happen on Wed.
ReplyDeleteSqueaky wheel, keep on turning! YOU GO GIRL!