I just don't get what we're doing wrong at night. It seems every time we make a change, we have a few good nights and then it all sucks again. Yes, you heard me... sucks. I'm tired and crabby and all I want is a good nights sleep where I'm not worrying about stupid numbers.
What I can't be sure of is if Elise is going low overnight and the morning highs are a result of a rebound. But we're checking her. Last night before bed she was 197... a bit high, but we gave her the usual dose (3.5 of NPH) and a few less carbs. At 1:30 am she was 193, and she woke us up at 3:00 am crying for banana, something she does when she's low. To our surprise, she was 283! Did we miss a low and she was just slow feeling it?
She woke up this morning at 254 and 1.1 ketones. In fact, I have a suspicion she wakes up with ketones almost every morning. I'm going to start putting cotton balls in her diaper again and using ketostix to find out for sure. The ketones were gone by 10:30, but her BG was almost 300. At lunch she was back to a normal 98.
We have an endo appointment coming up in 10 days and I'd like to have this figured out by then. I just don't know what else to do. Until I know for sure that she's not going low overnight, I don't want to raise her insulin.
We had actually had about a week of pretty good overnight numbers, so I thought we were through this.
It's enough to make you want to sit and eat a whole bowl of apple butter in one sitting.
10 months ago
Im so sorry you are going through this again . wow Im wondering if she has no awareness of the low coming on . this is so weird . I m glad you have an endo appt and im also glad you are going to do the ketone test again . wow i hope you get all this figured out soon .Hugs !!
ReplyDeleteDang Joanne...so sorry! Last night was the first night that I was able to keep Jada over 100 but under under 200 for the first time ever!! And I can guarantee you it will most likely be a LOOOONG time before that happens again!
ReplyDeleteOne of Jada's signs of being high is hunger...I often can't tell if she's high or low unless we test. Who knows... maybe Elise is going through a growth spurt. There are so many different things it could be.
I know NONE of that helps...I'm sorry! All I can tell you is I COMPLETELY UNDERSTAND! :(
Believe me when I promise you, there will be a time in your future where her numbers will be more predictable. It's just with an active 2 year old, you can only do so much. And you ARE doing SO much!
ReplyDeleteGive her a couple extra tests to make sure...I know when the boys were babies there was constant adjusting. And L, he says he is hungry when he is high too...so it's hard to tell... :( You'll figure it out, and she'll be good for awhile and then her needs will change, and you'll figure it out again. (That was meant to be an encouraging statement, I'm not so sure it is...it's a little depressing, I'm sorry.) I wish I could help more, it seems all I can do is just ramble on...so I'll shut up now.
BLECH to diabetes!
ReplyDeleteAddy complains of starvation when she's high...STARV.A.TION...you'd think she hadn't ever eaten before in her life.
She complains of hunger when she's low too, but only after her number is on the way back up, after juice.
Anyway, when Addy is having a rough time, I'll check her every hour. I know that's crazy -- but it's the only way I can figure out what and where the problem is.
We tried a CGM (Navigator) for troubleshooting, but it wasn't every accurate. I couldn't ever trust it so I had to test her anyway to compare a finger poke to the CGM reading. It just became another hassle in an already frustrating situation.
Wishing you GOOD NUMBERS...and good luck...
Yup, diabetes SUCKS! I'm sorry you are having a tough time. I'm pretty sure Avery wakes up with ketones more often than I'd like. From what the endo says, its fairly normal "starvation" ketones from having not eaten since dinner. I agree with Meri- although I don't have near as much experience- the good times never last too long- but neither do the bad.
ReplyDeleteGrowing perhaps :( I check Maddison every 1.5 to 2 hours at night if something is weird, its the only way I know where to adjust! CRAZY DISEASE!! You WILL get there!
ReplyDeleteOMG - you are freaking me out! Nate wakes up in the 200's everyday. We just can't get it right either but I try not to wake him at night because he gets MAD. That's in all caps because he really gets MAD!
ReplyDeleteIt sounds like I need to check him more often. But, I think what Meri said was right on . . . with a growing, active 2 year old it's going to be tough to get it figured out for too long at a time.
Hey - shoot me an email and tell me why you would do the ketostix vs. the monitor? The endo did tell me that the cotton balls in diapers overnight is tough because some of the tee-tee is old and some new and the ketones could have been from earlier in the night and cleared up in the AM. So dang confusing.
Diabetes SUCKS!
BTW - see you Thursday! Yea!
ReplyDeleteI always had trouble at night. I had to switch my long acting insulin to a different time. it is not at 11 pm and 11 am. Maybe ask your endo about the dawn phenomenon. It is a weird disease, no matter how hard you try, you still get problems. Take care and I hope every gets better. :)
ReplyDeleteNights are the hardest, I heard that our liver produces a sugar hormone aroun 2-3 am...
ReplyDeleteNot sure if true or not. Your doing such a good job, and making such a difference. I am new to the blogging thing and saw the shirts, wow amazing job. Thanks so much for all your hard work!!
Right there with ya Joanne! I am sorry to hear your night time numbers are wonky again. We do extra testing when we are trying to figure these things out (hooray..even LESS sleep than normal!). I know it doesn't help you to figure anything out but know that there is another sleepless mom out there pulling her hair out over night time numbers just like you are (that would be me). Hoping they settle down again soon...Let us know what your endo has to say!
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