Tuesday, February 2, 2010

Things I've learned about Diabetes this month... January edition

-As D-Moms (and D-Dads), we all have something in us that helps us to keep putting one foot in front of the other. Even when we feel like there is nothing left to give, we keep going. Diabetes does not take holidays. It doesn't sleep. It is a 24/7, 365 day, forever and ever, amen kind of disease.

-I don't think there is a word in the english language to describe how tired I am. Maybe in sanskrit, but not english.

-Diabetes is just a part of every day life for Elise. The other day we went over to our friend's house for dinner. When we arrived, their little girl said to Elise, "let's go play!" To which she replied, "I have to check my blood sugar, 'kay?" Elise accepts her diabetes, why can't I?

-Nap time will never be very enjoyable for me. Elise's nap falls during a time when her BG starts to head south. I always test her pre-nap and give her a snack if I feel her BG warrants it (approx. 180 and below). But yesterday, her BG was 274 before her nap. She ended up sleeping for almost two hours, and I started to get nervous, so I went in to check her (which will always wake her up). She was 55. She fell over 200 points at a time when the NPH should all be out of her system (and should not be causing a dip like that). It's for this reason I never let Elise nap for longer than two hours.

6 comments:

  1. I've been thinking a whole lot about the "feel like there is nothing left to give" thing. Not sure how we all do it sometimes :)

    Great post... glad your back!!

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  2. Im not sure how we all do it either and definately dont how I did it with my son at home when he was a little guy and a teenager . I guess we just do what we do when we have to do it .

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  3. Nap time is NOT enjoyable for me anymore either.....quite often I let Jada fall asleep on the couch next to me and I can't take my eyes off of her. She tends to drop significantly during nap,too.

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  4. I always hated nap time too for the same reason. I am glad Addison has dropped his nap! I understand about being tired. as well.I had post partum hypothyroidism and it was brutal..I felt like a zombie...Take care Joanne..

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  5. I feel just like you do and I survive on what I call the "auto-pilot program". Even when you get a break, you never truly do. There is a constant game of hot potato going on at our place and I think everyone I know with T1 kiddos have the same challenges. You're always stronger than you think you are, hence the reason you can survive on a nanosecond of sleep! Keep believin'!

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  6. Hi Joanne,

    Thanks for your comment on my blog. I'm happy to "meet" you, too. :)

    So you've experienced both hyper and hypothyroidism. Wow! Well, I really hope they're able to bring down your TSH level and you feel much, much better soon! I know how miserable you feel right now. You're not crazy! Those symptoms are real and just awful!

    Thanks for offering to add my blog to your D-blog. I'd love that! I'm working on launching a new blog soon. My goal is to keep my Jack's Pack blog focused on our JDRF fundraising efforts and to then have a second blog to write about all the other stuff related to diabetes and family life. I'll announce the new blog on Jack's Pack as soon as it's up and running, which will hopefully be within the next month. Until then, I'll keep blogging away at Jack's Pack, and I would love to be a part of your D community. :)

    Feel better and keep us all posted on how you're doing. I'll be thinking of you.

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