Well... I'm a little embarrassed. After almost 3 1/2 years of dealing with this disease, you'd think I would know better by now. I need to stop paying attention to the man behind the curtain.
Diabetes is always there. Pushing buttons and pulling levers. Making a lot of noise that scares the poop outta me, but in the end really amounts to nothing.
Those crazy lows we were having? They have exited stage left. Well, mostly. We're still not back to Elise's normal insulin consumption. It's a little more than half, and being tweaked daily (not abiding by the 3 day rule this time).
I appreciate everybody that took the time to comment or email me (and if you did email me, I'm sorry I haven't responded... life is ca-razy right now). I looked long and hard at Elise's numbers, but just couldn't agree that it was her basals. Her lows would ALWAYS come 1 1/2 to 2 1/2 hours after eating. When I manually cut her bolus in half, she would be okay. If she didn't eat, she stayed level.
Of course, almost as soon as I changed her settings, she swung back the other way.
What ticks me off is that I KNOW that this (weird and wacky things) happens with D. And I KNOW it will go back to "normal" at some point. So WHY do I always wring my hands and freak out the second D starts blowing smoke? And drag all of you through my crazy by posting about it?
I guess it's therapeutic for me to spew crazy on my blog. That way, I don't lie awake at night obsessing about it over and over. And, I always appreciate the support and insight I get when you guys leave comments.
And while I'm still going to run to my blog and regale all of you with the latest ways diabetes is making me coo-coo bananas, my new mantra is going to be "pay no attention to the D behind the curtain". And I'm counting on you to yell it at me the next time diabetes throws me a curve ball.
It's funny how we go through these cycles, too. Right now we're in a high cycle. We were going low at lunch every day for months; now suddenly we're high. I know as soon as I adjust, I'll probably just adjust back. Must be all the things going on in their growing bodies.
ReplyDeleteHey, spout all the craziness you need to! We welcome the awesomeness!
ReplyDeleteI hate the rollercoaster ride.
ReplyDeleteYou know, I remember the CDE training us at the hospital. She said Matthew's range was 70-180 and she made it seem attainable. I honestly thought we'd just keep him there.
HA! Do we ever have a day when every number is in range? Rarely. I don't think I was prepared for the truth of d....your post just made me think of that..
Totally hear ya. I just wanna get off the roller coaster! But...uh...yeah. There's no getting off of the D-coaster. Adam was low in the mornings...changed basals...good for 3 days. Now he's high in the mornings - it's been 4 days...do I dare change basals again?? Ugh.
ReplyDeleteDon't apologize. It makes me feel normal when you spout all the crazies!
ReplyDeleteI'm with Misty...you always make me feel almost normal again when I read your posts! So thanks for that and keep them coming. xoxo
ReplyDeleteSorry I missed the last few posts. Sooo been there. Shit. So there!
ReplyDeleteHope the lows are gone for good!
Ahh, missed that point about the basals staying steady in the absence of food.... then, of course, it has to be the bolus insulin. Yet, such a huge reduction in the bolus insulin... it would throw me for a curve as well, and I have been at this almost six years. We have seen crazy swings but for us it's usually basal related, evening, growth-spurt related. So you were right all along. These very young children... there does not seem to be any rules; anything we were taught goes right out the window. Glad the lows are manageable now. What a rocky ride you have been on. Whew!
ReplyDeleteAhhh, D is a rat b--tard when it comes to steady, isn't it? Glad you figured it out, you always do my dear!
ReplyDeleteI love you. Thanks for making me feel normal. That is all. :)
ReplyDeleteI totally agree with Jessica...please don't ever stop the crazy posts...they make me feel like I have a little company on the yellow brick road to crazy town...:o) Glad to hear you are seeing better numbers these days!
ReplyDeleteSo I've been searching your blog like a crazy Mom because I remember you posting about these crazy lows with Elise. Same thing going on with Natalie and it is freaking me out. Reduced carb ratios and now lantus and still low. How long did this last with Elise? We are going on day 4 or so.
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